Eosinophil

Welcome to the NJ/PA   Eosinophilic Support Group

 

 

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Resources:

 

Below are some of the resources that may be available to you:

 

Medicaid:

 

All states have a medical waiver, or Katie Beckett Waiver.  The rules differ in each state.  If your child has ongoing or excessive medical bills, it is worthwhile to apply for Medicaid in your state as you may be eligible to receive coverage (primary if you have no insurance or secondary if you already have insurance) to help cover the costly medical bills associated with EE & EGID.  

 

Some states may require that you be denied by Social Security.  Others may have income requirements.  In NJ, there is Medicaid for the Medically Needy (those who are not eligible for Social Security), and while your income & liquid assets are considered when applying for your child, a 2nd child and medical bills are used to offset the income, thereby allowing for the greater possibility of coverage if you do not have much in the way of liquid assets (i.e. 2nd home, bank accounts, stocks, etc).

 

In NJ, if your child also has a pervasive developmental disability (i.e. on the autism spectrum, etc), he/she may be eligible for more assistance through the NJ Division of Developmental Disabilities (DDD). 

http://www.state.nj.us/humanservices/ddd/index.html

 

More info can be found about NJ Medicaid for the Medically Needy at:

http://www.state.nj.us/humanservices/dmahs/childrens.html and

http://www.state.nj.us/humanservices/dmahs/aged-blind.html

 

In PA, there is reportedly more access to Medicaid for adults and children. 

While PA Medicaid eligibility is not as familiar to us at this time, some info is available at:

http://www.dpw.state.pa.us/LowInc/MedAssistance/MAEligibility/003670296.htm

You may need to follow additional links, or call them about it.

 

In Delaware,

http://www.dhss.delaware.gov/dhss/dss/medicaid.html

 

If you are incurring a lot of medical bills, but aren’t sure that you’ll be eligible, it doesn’t hurt to apply to be sure.   Make sure you let them know that you are applying for “Medicaid for the Medically Needy”.  If they don’t know what you are talking about, talk to someone else as it seems that not everyone in the DHS is familiar with this waiver.  

 

 

Delaware:   Bureau of Children with Medical Handicaps (BCMH)

http://www.delawarehealth.org/bcmh.htm

May help cover medical expenses for those living in Delaware. 

 

 

Catastrophic Illness in Children Relief Fund:

 

In NJ, there is a “Catastrophic Illness in Children Relief Fund”.  If you live in NJ and want to find out if you’re eligible, contact the Dept of Human Services.  More info can be found at http://www.state.nj.us/humanservices/catill/cicrf1.html

 

 

NJ Special Child Health Services:

 

Once a child is registered with them, a case manager is assigned to help you access any necessary resources that are available to your child.  Please use the links below to look into this.  It has been a valuable resource to many. 

http://www.state.nj.us/health/fhs/sch/index.shtml

http://www.state.nj.us/health/fhs/sch/schr.shtml (for an explanation of the Special Child Health Registry)

http://www.state.nj.us/health/fhs/sch/sccase.shtml (Case Management contact numbers)

 

Formula Coverage Assistance:

Ross (EleCare) review of formula coverage
http://www.ross.com/reimbursement/default.asp
http://www.ross.com/reimbursement/statedetail.asp?StateID=1
Ross Patient assistance Program
http://www.needymeds.com/papforms/rosmed0407.pdf
http://www.rxhope.com/papinfo/company/pdf/RossMetabolic.pdf
SHS/Nutricia Neocate Patient Assistance
http://www.neocate.com/aaa_neocate/0,534,112,97,236,0,0-179-77.ashx
SHS/Nutricia Sample Physician Letter for Coverage and Information
http://www.shsna.com/pages/neocate_junior_ins_letter.htm

**Note:  NJ & NY have mandates requiring insurance companies to provide coverage for enteral formulas.   These mandates do not apply to self-funded companies. 

 

Medication Assistance:

HelpingPatients.org -  Patient Assistance

 

For advocacy information / advocacy resources, please see our advocacy page:

http://www.njpaeos.org/advocacy.html

 

 

                        Non-Profit Organizations:

                        APFED

FAAN- Food Allergy and Anaphylaxis Network

Kids With Food Allergies

Oley Foundation

 

 

If you know of any additional resources that we don’t have listed here, please let us know.  Thanks!