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Eos in the News!
2010:
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BIG NEWS!!!! Gene Site Found For Eosinophilic
Esophagitis!!!!! According to a press release from CHOP and article found on
EurekaAlert: “EoE was linked to a
region of chromosome 5 that includes two genes. The likely culprit is the
gene TSLP, which has higher activity levels in children with EoE compared to
healthy subjects. In addition, TSLP has been previously linked to allergic
inflammatory diseases, such as asthma and the skin inflammation, atopic
dermatitis.” http://www.eurekalert.org/pub_releases/2010-03/chop-gsf030410.php |
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The 4th annual National Eosinophil Awareness Week was 5/16 – 5/22/10 That week was be a great time to spread awareness; however, every day is a good day to raise awareness about
Eosinophilic Disorders! |
2009:
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Just in time for Eosinophilic Awareness Week 2009, actress/singer Demi Lovado (Disney star) and Ned Spektor (manager for the Jonas Brothers) were honored as APFED's Education Embassadors. A link to the video of their touching speeches at the 5/11/09 Gala in Hollywood is below: http://www.youtube.com/watch?v=KDV4lq3LU_4 You can find more information at |
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Here’s a link to a wonderful, informative new (9/08) article about Eosinophilic Gastrointestinal Disease! http://parasolservices.com/publication/EGIDs.pdf |
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People Magazine Article – 1/21/08 issue, page 121 Our own Annette Turner
(one of the former leaders of this support group) and her son Adam are
featured in an article in the 1/21/08 issue of People Magazine! It’s a wonderful article and is great for
helping spread awareness about EE.
Good job Annette, Mike & Adam! http://www.people.com/people/archive/article/0,,20171285,00.html |
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Extreme Makeover – Home Edition A family
in Idaho was selected to receive an Extreme Home Makeover. All 4 kids have eosinophilic disorders
throughout their GI tracts (Eosinophilic Enteropathy), in varying severity
(but all quite severe), but it is also in other organs as well. Their issues go beyond “just” EE. Well, the family not only received a new
home (built in a week), but they were flown to CHOP to be evaluated by the
Drs here! It’s bringing much needed
attention to eosinophilic disorders & it’s great PR for CHOP to boot. You
may recognize Dr Liacouras, Dr Spergel, Dr Brown and Michele Shuker who were
shown when the family was visiting CHOP. Congratulations
to the Stockdale Family of Middleton, ID!
While they might not live in our area, they are still part of our
eosinophilic community. **Update**:
For anyone who has saw 12/2/07 episode of Extreme Home Makeover (about
the Stockdale Family) and are nervous that your EE/EGID child may wind up
like them, remember that the kids in that particular family have more going on
than “just” Eosinophilic Esophagitis or Eosinophilic Gastrointestinal
Disorders. Those kids have problems in other organs, not just their GI
tracts. While EE/EGIDs themselves are definitely life-altering
and awful to live with, they are not fatal and they do NOT spread to other
organs. Remember, if you are concerned about information you have seen
or heard on TV or elsewhere, address those concerns with your Dr to get
accurate information. If you missed the show and want to watch it online, you can do
so at http://dynamic.abc.go.com/streaming/landing (just
Click on Extreme Makeover Home Edition & look for the Stockdale Family’s
episode). It’s also now available on
You Tube. |
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The new
ICD-9 codes have been approved!!!! You can
read the press release here: The new codes are:
535.7 - eosinophilic
gastritis 558.42 - eosinophilic
colitis. These codes became
effective on Oct. 1, 2008 |
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It’s official! The first ever “National Eosinophil
Awareness Week” 5/13 – 5/19/07 The
resolution (House Resolution 296) was unanimously passed on 5/15/07! It is
officially set for the 3rd week of May, every year from here on
out! Having
this week will help raise awareness for all eosinophilic disorders (EE,
EGID, HES & Churg Strauss). Congratulations
to everyone who worked so hard to get this passed (within
a month, no less). Thanks
to the parents at APFED for initiating it, ~And~ THANK
YOU to all of the congressmen & women who
agreed to co-sponsor the resolution! The full text of the resolution is below: H. Res.
296: Supporting the goals and ideals of National Eosinophil Awareness Week,
and for other purposes HRES 296
IH 110th
CONGRESS 1st
Session H. RES.
296 Supporting
the goals and ideals of National Eosinophil Awareness Week, and for
other purposes. IN THE
HOUSE OF REPRESENTATIVES April 16, 2007 Mr.
LARSON of Connecticut submitted the following resolution; which was referred
to the Committee on Education and Labor |
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RESOLUTION Supporting the goals and ideals of National Eosinophil
Awareness Week, and for other purposes.
Resolved,
That the House of Representatives— (1)
supports the goals and ideals of
National Eosinophil Awareness Week; and (2)
encourages health care providers
and the American Partnership for Eosinophilic Disorders to increase education
and awareness regarding eosinophilic disorders. |