Eosinophil

Welcome to the NJ/PA   Eosinophilic Support Group

 

 

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Who are we?

 

We are a support group for adults and parents of children with

Eosinophilic Esophagitis (EE) and Eosinophilic Gastrointestinal Disorders (EGID),

living in NJ, Pennsylvania & Delaware.

We offer:

 

*           Bi-monthly local support meetings for adults/parents

*           Family Outings

*           Direction towards resources in our area & on the web

*           Fundraising for research, education, advocacy and awareness

of Eosinophilic Gastrointestinal Disorders

 

 

Please be sure to visit our Fundraisers Page

for information about upcoming important fundraising events!

 

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The new ICD-9 codes have been approved!!!! 

You can read the press release here:

 

http://apfed.org/downloads/ICD9%20codes%20approved_RWB1.pdf

 

The new codes are:
530.13 - eosinophilic esophagitis

535.7 - eosinophilic gastritis
558.41 - eosinophilic gastroenteritis

558.42 - eosinophilic colitis.

 

These codes will be effective on Oct. 1, 2008 (not 1/09 as previously listed)

 

 

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APFED (American Partnership For Eosinophilic Disorders) has created

a wonderful new cookbook to help with our special dietary needs. 

Some of our own group members contributed recipes!

It’s called “Extreme Cooking for Exceptional Diets”, and it is available via the APFED website.

 

 

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The 2nd annual

National Eosinophil Awareness Week was 

5/18 – 5/24/08

 

That week was a great time to spread awareness;

 however, every day is a good day

to raise awareness about Eosinophilic Disorders !

 

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July, 2008

The long-awaited ICD-9 codes are here!

 

It was very important that new specific

ICD-9-CM diagnosis codes be created for eosinophilic gastrointestinal disorders (EGIDs).   They will be effective on October 1, 2008!

 

Over the past 2 years, American Partnership for Eosinophilic Disorders (APFED) has been
working with the CDC's Center for National Health Statistics (NCHS) to create unique ICD-9-CM diagnosis codes for eosinophilic
gastrointestinal disorders. 


The new codes are:
530.13 - eosinophilic esophagitis
535.7 - eosinophilic gastritis
558.41 - eosinophilic gastroenteritis

558.42 - eosinophilic colitis.

We needed these unique ICD-9 codes for EGIDs in order to:
• Allow researchers to track or identify

   patients with these disorders;
• Develop new treatments specific for

   EGIDs;
• Permit accurate reporting of EGIDs
• Improve awareness and coding

 

Great News!:

 

It’s official! 

 National Eosinophil Awareness Week

5/13 – 5/19/07 (1st annual)

 

The resolution (House Resolution 296) was unanimously passed on 5/15/07! 

 

It is officially set for the 3rd week of May, every year from here on out!

 

Having this week will help raise awareness for all eosinophilic disorders  (EE, EGID, HES, &  Churg Strauss). 

 

Congratulations to everyone who worked so hard to get this passed (within a month, no less).   Thanks to the parents at APFED who initiated it,

~And~

THANK YOU to all of the congressmen & women who agreed to co-sponsor the resolution!

 

Please see the NEWS Page for details.

 

 

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****DISCLAIMER****

This website has been set up by parents of children with eosinophilic disorders.

We are NOT doctors.  The information shared on this website is not intended to replace

advice from your licensed healthcare provider.  Decisions regarding medical care should

always be made with your licensed healthcare provider.  Please consult your doctor before

making any changes in medical care.  No one should ever disregard or delay seeking

medical advice due to the content of this website.

 

 

                                                Eosinophilic esophagitis, eosinophilic gastroenteritis, eosinophilic gastritis, eosinophilic colitis, eosinophilic enteritis, eosinophilic gastrointestinal disease,

eosinophilic, eosinophil, eosinophils, food allergies, EE, EGID, EG, EC, HES, feeding tube, enteral feeding, g-tube, ng tube, mic-key button, Neocate,

Elecare, EO28, support group, NJ, Pennsylvania